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This might be a little niche. I've been type 1 diabetic since 1997. All fine, no issues.
About 2 years ago I began struggling walking short distances, I would get intense head pressure pain and pain inside of my neck/throat. I went to A&e due to palpitations, severe heartburn and very bad chest pains. They found nothing wrong and gave me omeprazole which didn't do anything.
The pain carried on and I became out of breath just walking up my stairs. The pain in my neck and head when I was walking about was so intense I had to get taxis to be able to do the short trip to pick my children up. I also noticed I would get the same intense pain if my blood sugars rose above 11 ish.
I kept going to the docs who did many tests and ordered a chest x ray and neck ultrasound. Everything was fine. I went back and was put on amitriptaline which did not help at all. I went back again and they ordered more tests. My parathyroid level was raised, but a normal calcium range, and my vitamin d level was 17. For 3 weeks I have been taking one 50,000 tablet weekly and have another 3 weeks to go until I take a smaller dose daily.
Does anyone have any experience of getting better? Particularly anyone with the strange symptom link to type 1 diabetes?
Thank you
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